Episodes

Episode 11: Idiopathic Intracranial Hypertension with Advocate Amanda

For this episode, we discuss Intracranial hypertension with patient advocate, Amanda. According to rarediseases.org, “Intracranial Hypertension (IH) is characterized by increased pressure inside the skull. Intracranial means inside the skull and hypertension means high fluid pressure. Intracranial hypertension means that the pressure of the fluid that surrounds the brain (cerebrospinal fluid or CSF) is too high. Elevated CSF pressure can cause two problems, severe headache and visual loss. If the elevated CSF pressure remains untreated, permanent visual loss or blindness may result.”

Episode Links:

YouTube: link

Podcast: link

iTunes: link

Amanda’s Instagram: @linda_leeb

Resources:

Accutane (isotretinoin) Disease Interactions

Idiopathic Intracranial Hypertension Patient Info

Support Groups:

reddit thread

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